Related sites: Other places to find information and support

Organizations that support the hemophilia community

Your local chapter of the National Hemophilia Foundation (NHF) can provide information, support, and connection to others in the hemophilia community. In addition, the many organizations listed below are active in the hemophilia community nationally and around the world. You can access many of them through your computer.

World Federation of Hemophilia
www.wfh.org
514-875-7944
A member of the World Health Organization since 1969, the World Federation of Hemophilia (WFH) works to improve and sustain treatment of people around the world with hemophilia and other inherited bleeding disorders.

National Hemophilia Foundation
www.hemophilia.org
800-42HANDI (800-424-2634)
The National Hemophilia Foundation (NHF) was founded in 1948. NHF is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy, and research.

Hemophilia Federation of America
www.hemophiliafed.org
800-230-9797
The Hemophilia Federation of America (HFA) assists and advocates for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders.

Centers for Disease Control and Prevention
www.cdc.gov
800-CDC-INFO (800-232-4636)
The Centers for Disease Control and Prevention (CDC) is an agency of the US Department of Health and Human Services (HHS). The CDC collaborates with partners around the world to create the expertise, information, and tools that people and communities need to protect their health. The CDC's Web site features a section on hemophilia.

LA Kelley Communications, Inc.
www.kelleycom.com
800-249-7977
LA Kelley Communications was founded in 1990 by Laureen A. Kelley, the mother of a child with hemophilia. It offers a variety of educational tools—original books, presentations, workshops, and newsletters—that are free of charge for hemophilia patients.

The Coalition for Hemophilia B
www.coalitionforhemophiliab.org
212-520-8272
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with hemophilia B. Its mission is to make quality of life the focal point of treatment for individuals with hemophilia in the 21st century. The site provides information about events and educational opportunities, as well as current and past newsletters.

HemAware
http://www.hemaware.org
Sponsor: National Hemophilia Foundation
HemAware is the premier print and online magazine for the bleeding disorder community. Topics addressed on the site include life stages, research, treatment, wellness, family issues, women's health, advocacy, and community news.

Haemophilia (The Official Journal of the World Federation of Hemophilia)
www.blackwellpublishing.com/hae
Sponsor: World Federation of Hemophilia
Haemophilia is an international journal dedicated to the exchange of information regarding the comprehensive care of hemophilia. The journal contains review articles, original scientific papers, and case reports related to hemophilia care, with frequent supplements. Sample issues are available for viewing online.

Blood (Journal of the American Society of Hematology)
www.bloodjournal.org
202-776-0544
Sponsor: American Society of Hematology
Blood is a weekly medical journal published since 1946. It provides an international forum for the publication of original articles describing basic laboratory, translational, and clinical investigations in hematology. The online version, Blood Online, provides similar content to the public.